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Optune must be very costly Is it available in india

oh snap, I got this, better get moving and travel while I can

Bless all of you, I am recently diagnosed with brain cancer and awaiting chemo and radio therapy. Hearing positive stories really helps me. Thank you xx

Know of that completely as my headaches hit me right after I graduated school and at work . . But that’s in 1991 . As far as I know treatments have progressed at least

It’s just so awesome that the treatments have evolved since mine in 1991 ! Hope to be an example of survival 🙃 . . It’s been over 30 years and I even JUST finally retired. Now when I got radiation therapy it wasn’t the same, now it’s REALLY EVOLVED ! ❤

So cute😍😍

Will Goals for Glio come to California?

Well I had a GBM in 1991 and I’m still alive ! 😊 Regrettably no longer walking very far ( balance and memory issues have presented themselves ). But there’s DEFINITELY HOPE !!!

I hope l make it as long as you have. I was diagnosed with Glioblastoma in December 2023.

I'm just shy of 16 months survival without phase 1 of treatment. Couldn't have surgery or radiation due to my tumor being diffuse. Fills in all the nooks in the right hemisphere of my brain. Surgery and radiation would have been detrimental to my quality of life. Jumped right into temezolomide (oral chemo) and Avastin infusions. Taking anti- seizure meds everyday. Wearing Optune since Oct 23. Feeling good now but this could be as unpredictable as being diagnosed. Stay strong all my GBM warriors!!

Praying for all the families affected by GBM. 🙏🏼 I was diagnosed with grade IV a couple of months ago. In third week of radiotherapy and chemo now. Doctors have told me it will come back more aggressively after treatment. I wanted to try adding Ivermectin or Mebendazole to my treatments but I am not permitted to here in Australia as Doctors are not allowed to go beyond NHS protocols of radiation and chemo, even though they don’t cure it. I am so thankful for my beautiful husband, family and friends and for their prayers. ❤🙏🏼✝

My life-partner of now 17 years, overnight suspected stroke, rushed off to EC, CT and MRI brain tumor, the size of a fist, in his occipital lobe; managed to rush him off to another city, for emergency neurosurgery while busy coning, arrived in time, mannitol and steroids, in theatre at 4pm, out at 830pm. Histology back 3 days later - glioblastoma multiforme. September 22nd 2021. It was a Wednesday. Standard care. And even with another 2 craniotomies with tumor excisions later, and failed temozolomide and Avastin, with growing tumor in his parietal lobe, and now on palliative chemo, he lives and longs to live life. 2 years and 10 months. Thanks to our wonderful oncologist and neurosurgeon, but more importantly, thanks for such a positive extraordinary man in my life. Keep fighting and living life, to those with disease and also to the carers.

I need a cure. I have Glioblastoma.

Maybe you can update us on the current GBM agile trial. When can we expect data? What drugs are starting to prove effective??

Please keep going and find that cure. 💔🙏🏼❤️

My mom has Stage 4 Breast Cancer that metastasized to her lymph nodes, liver, and bones. It was maintained with chemo every month for a year. Then early this year doctors confirmed it also spread to her brain. She had 5 radiation treatments in one week due to the severity of little tumors. After the 4th treatment she had a panic attack or silent seizure and things just continued to go down hill from there. Her mobility slowly shut down, had hospital visits because she stopped having bowel movements. Hospital had her bedridden without actual food for weeks only IV liquids. Causing major delay for her chemo and radiation treatments. Once we took her out of hospital, her chemo docs said nothing could be done now, put her on hospice. By then she could only move her face and neck. Now her jaw is locked and docs say food or iv liquids wont elongate her life. I dont want her to feel she’s starving or feel pain especially now. I wouldn’t wish this evil on my worst enemy. My mom didn’t deserve this hard life. Ppl cancer caught late acts as a demonic plague on your body. And if treatments don’t cure it right away, or stabilizes it, it may speed up the downfall. whether chemo or surgery gets rid of the cancer or not. Please be aware that it can come back! And aggressively, or spread to the brain for months before your doctor even notices. Exercise and eat clean early on, get ride of stress. Cancer loves sugar and stagnate bodies. Many chemo treatments don’t target the brain so its missed. Advocate for yourself because for some doctors you are just more money in their pockets or a lost cause due to your stage of cancer.

My wife all so suffering gbm over one year now

My 32 year old brother passed away last 4 months due to this life threatening High Great Glioblastma disease😭😭

Loved my time spent with our group in DC with NBTS. You two are certainly warriors for this cause. Thank you from the bottom of my heart in continuing to do so. :)

Medical treatment should be free ,!

WOW. Love you guys and all that you do to support the cause. You are warriors!

Love you two, and will never forget Mark and his fight. -joanne

great lecture, this is very important

I lost my brother 8 days ago because of glioblastoma, I can feel them all. He was 37😞

Thank god for free healthcare in Australia 🇦🇺 ❤

IF I WERE YOU I WOULDN'T DO IT, CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS. JESUS LOVES YOU ❤

I am also 26 months in and wear optune 24/7 I thank God and my wonderful soctor!!

Fiancé was diagnosed on 3/24/24. Surgery was 4/6/23. Had recurrence 12/19/23. Second craniotomy 1/24/24. This disease takes your security , your patience, your future, and your soul. He’s still alive and fighting. But how much longer can we fight?

this video did not age well

What a cruel disease. I feel for the loved ones and the patients who suffer. The doctor in the video seems really excellent, I love her passion and compassion for patients and their loved ones. I hope treatment for this disease improves soon.

My husband passed from a GBM. He survived for 10 months, it was a 4.

Hi beautiful lady. Hope your still doing well. Sending love from New Zealand 🇳🇿 ❤️

My mother is a GBM grade -4 patient...she has identified in june,2023...she had done with the surgery and also completed her radiation...now she is continuing Temozolomide as her chemo medication.... please if there are some other treatments except these please please please help me

Praying for a cure

Doctor, please, how do I participate in a trial version? I have breast cancer from Algeria. May God protect you. Help me. Our country is medically incapable. I am 42 years old. I beg you to help me.

Can i know all persons grade who survived more than 2 yr ...and continue

Thank you. My wife passed in 2012 from a brain tumor. Yes there is a cure coming. Hope is the way!

Fantastic job guys

Gives me hope thx

My husband was diagnosed with GBM 2 months ago and is now undergoing radiation and chemo. Out of nowhere, our lives have changed forever, and we would love to be part of your clinical trials. We don't have much time but want to get on Prozac as soon as possible. We see a ray of hope where before, we had none. Please help us and thank you.

Nov 1, 2023 will be 6 years since my tumor made its presence known. I am grateful for amazing doctors and treatments, as well as the book, "Keto for Cancer" and herbal and nutritional support. The most helpful thing, though, was the advice to enjoy my life!

Thank you for all that you have done to help. My husband was diagnosed 2 months ago and went through surgery 1 month ago and is ow going though radiation, and chemo, and I am so lost and afraid. He has been my life for almost 40 years and I don't know how I am going to deal with this horrible trajedy.

Hey, how can i access the pediatric brain tumor dataset as a student?

Shoutout to GBM 🥇🥇🥇 I’m a GBM survivor for 17 years and counting. 2014 teaching BID Deaf as a couch Coffee Barista students ☕️☕️☕️🙏🙏🙏❤️❤️❤️

Now a MBA graduate, and 18-year survivor and happy young woman!

I am a Giloblastoma surviver and I am in my 18 th month and I am doing really good. I did six weeks of radiation and chemo treatments and then I started optune cap and then we did 25 treatments more of radiation and I am doing chemo every 3 weeks and I am doing really good. I am not taking any medication at all for seizures or swelling and my last M R I was the best one we have had. I thank the Lord every day for another day and I know that the Lord is with me all the time. It is not about me but it's about what the Lord is doing for me. I haven't had one head ake or gotten sick because of chemo. Not one time have I been sick. Thank you Lord.

This video is very informative. Dr Nduom did my wife surgery in August 2022. Thanks to him, she's doing well and free of the left side meningioma. He's an excellent surgeon and I would highly recommend him

should u also deliver radiation therapy to acoustic neuromas?

Absolutely fabulous human being. Thank you for sharing her story.